Our Research

This year Patientview has conducted a survey of 1,100+ patient organisations to determine the roles that these patient groups currently play in healthcare, both in the provision of services and in influencing policy. These groups also define the types of support they need to achieve their goals.

The extensive and granular data in the ‘Patients in Action’ report are analysed to identify trends and differences in the relationships between patient groups (of 20 therapy areas) and healthcare systems (of 19 countries). Healthcare companies can therefore fine-tune their strategies to optimise the support they provide their patient-group partners.

PATIENTS IN ACTION: understanding and supporting the roles played by patient groups in healthcare

The Patients in Action report ( available at end-October 2024) is provided in two parts (1. Quantitative and 2. Qualitative – feedback)

1.) Examines the extent to which patient groups are now essential healthcare stakeholders. Patient groups have, over the past decade, been taking on a role as vital stakeholders in healthcare systems—both at the level of provision, and at the level of policy. This new report allows patient groups to tell their own stories about the important work they do within healthcare systems—locally, regionally, nationally, and even internationally. Taken as a whole, it seems, the direct impact that patient groups are having on improving patient outcomes is considerable.

2.) Quantifies the types of services and policy activities that patient groups provide to healthcare systems. The data contained in this new report are explored by country, and by therapy area [as mentioned below].

3.) Quantifies the nature of the relationships between patient groups and other healthcare stakeholders—from pharma to regulators; from medical-device companies to nurses; from national policymakers to health insurers.

4.) Examines the scale of influence that patient groups feel they now have among other healthcare stakeholders, and looks at how these patient groups feel they are perceived within healthcare systems.

5.) Measures the scale of support that other healthcare stakeholders currently provide to patient groups—and considers patient-group attitudes to that support, focusing on what other types of help patient groups believe they need to fulfil current and future goals.

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For more information or to inquire about receiving a copy of the full report when released, please contact PatientView using the form below.