Patient groups - participating in research
How we work with patient groups
PatientView firmly believes that the views of patient groups should be considered in all important healthcare decisions and play an important role in ensuring patients’ voices are heard by the pharmaceutical industry.
How do we interact with patient groups?
Over the last two decades, PatientView has developed a strong relationship with patient groups worldwide. Our database now includes 40,000 patient groups from most therapy areas.
We believe patient voices are important, and we work to connect patients and healthcare by providing patient groups with a voice and platform to speak out while helping pharma companies understand patient insights and use them to improve their services.
Patient groups and health campaigners can have their voices and opinions heard directly by taking part in our annual surveys anonymously. We conduct these surveys independently, without any funding from pharmaceutical companies. Instead, we fund them by selling our products to industry-leading pharma companies, governments, and national and international drug regulatory bodies.
The Corporate Reputation of Pharma
Every year, from November to February, we invite thousands of patient groups to participate in our survey on The Corporate Reputation of Pharma. The questions are designed in collaboration with patient groups and address the issues important to them such as Patient Safety, Integrity, Transparency and Equitable Access.
The Corporate Reputation of Pharma Survey is an opportunity for patient groups to have their voices heard and share if pharma has met their needs and expectations. If the answer is no, there is an opportunity to influence how the industry and individual companies could improve.
How can this help your patient group?
Many pharma companies are finally beginning to build their strategies around patients, and the feedback you provide influences their approach. The Corporate Reputation of Pharma survey and research provide the pharmaceutical industry with the unique knowledge, tools and mechanisms needed to bridge the gap between patients and the industry – creating positive outcomes.
The Corporate Reputation of Pharma Survey 2023/24 is now closed. Find out more about the report here, or if you want a copy of the report, you can contact [email protected].
Pharma and ESG: the Patient Perspective
In 2023, PatientView published ‘Pharma and ESG: the Patient Perspective’ which aims to get the patient voice involved in pharma and ESG. The report draws on the analyses, insights, and views of 832 patient groups worldwide to ensure that the patient voice is more fully represented in pharma’s ESG priorities in the future.
To be updated in 2024