Latest News
February 2024: As election year in the USA begins to ramp up, the pharma industry will be a likely topic on the political frontlines. Media headlines and campaign pledges can… Continue reading “In an election year, what do US patient groups think about how pharma should improve?”
February 2024: Patient groups have a wealth of experience in the diseases and conditions in which they specialise—at least from a patient perspective. From this standpoint, these groups have traditionally… Continue reading “The growing role of patient groups in healthcare research”
At first glance, the ‘Environmental, Social and Governance’ (ESG) practices of the pharmaceutical industry can seem a subject far removed from the concerns of patients. This view has led many… Continue reading “Why should patients be interested in pharma’s ESG activities?”
October 2023: Online spaces—be they discussion forums, video games, and virtual or augmented reality—have become a central part of almost every young person’s life. Young people are spending more time… Continue reading “Can the metaverse have mental health benefits for young people?”
September 2023: For the last decade, Ukrainian patient groups have played an active role in the country’s healthcare system – supporting and advocating for patients. In the wake of the… Continue reading “Accessing medicines in Ukraine: the work of ‘Patients of Ukraine’”
August 2023: Patient-advocacy groups are an increasingly important part of today’s healthcare landscape. First emerging in Western countries, where the history of mobilisation and influence was strong, the patient movement… Continue reading “Patient Organisations in China”
June 2023: Cancer is the leading cause of death worldwide. An estimated 18 million cases were reported in 2020[1], and the incidence rate of the disease is predicted to increase… Continue reading “What 555 Cancer Patients Groups Say about the Corporate Reputation of Pharma in 2022”
May 2023: Now in its 12th year, PatientView’s Corporate Reputation of Pharma survey remains one of the few studies that explore the opinions of patient groups globally on whether pharmaceutical… Continue reading “What 2000+ patient groups worldwide say about pharma in 2022”
February 2023: The role of patient advocacy groups has become more consequential as patients and their families take an active role in their care. However, in the case of rare… Continue reading “Powerful Patient Advocacy: Advocating for people with rare and undiagnosed diseases”
February 2023: Patient groups are organisations formed by advocates with the goal of ensuring the best outcomes for patients. As one of the only stakeholders to network with every element… Continue reading “All about patient groups and how we work with them”
