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Reports on the following subjects are available for download for free Cancer • Understanding the Cancer Patient Movement: Facts, Figures, and Analyses, 60 pages, September 2005 (a PatientView report). For a PDF of the report, Click here • Information for Patients with Cancer, 92 pages, May 2003, ISBN 1-904394-06-X. For a PDF of the report, Click here • The Information Needs of Patients with Cancer, 3 pages, CancerFutures, volume 2, issue 1, February 2003 (article for, and published by, CF). http://www.cancerworld.org/CancerWorldAdmin/images/static_modules/images/1428/CF_1_Vol2_33.pdf ------------------------------------------------------------------------------------------------------------------------------------------------- Children's health and healthcare • The Rights of Children to Appropriate Healthcare: A Global Survey. Survey conducted during Summer 2006 on behalf of Professor Manfred Götz, Department of Child and Youth Medicine, Wilhelminenspital, Vienna, Austria. Survey report published December 2006. For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • Outcomes in Clinical Research - Whose Responsibility? ------------------------------------------------------------------------------------------------------------------------------------------------- The role of patient groups in clinical trials in Europe • Measurement of patient organisations’ involvement in clinical trials in Europe -------------------------------------------------------------------------------------------------------------------------------------------------
• What Should be Done About Counterfeit Medicines?: a Survey of Health Campaigners in Europe. Survey conducted during January 2007 on behalf of London-based consultancy, Together4Health. 236 executives from health campaigning groups in 34 countries responded to the survey. For a PDF of this report, Click here. A press release about this report is available on the Together4Health website. • Bitter Pills: qualitative, in-depth analysis of patients' experiences of substandard and potentially-counterfeit medicines (in their own words. An October 2007 report by London-based consultancy, Together4Health, exploring patients' experiences with counterfeit medicines. Based on the results of a survey of patients conducted by PatientView September-October 2007 on behalf of Together4Health. 657 patients from across the UK and Ireland responded to the survey. A PDF of this report can be obtained by emailing your request to Together4Health Click here. ------------------------------------------------------------------------------------------------------------------------------------------------- • Patients’ Priorities for Research into Epilepsy. A Survey of Patient Groups 2008 • Poster: Patients’ Priorities for Research into Epilepsy ------------------------------------------------------------------------------------------------------------------------------------------------- • Challenges Facing the Health Advocacy Community: a Europe-Wide Survey of Health Campaigners, 68 pages, April 2006 (first section of a report on the results of a survey for Health Equality Europe). For a PDF of the report, Click here • Challenges Facing the Health Advocacy Community: the Views of Policymakers and the Media, 34 pages, April 2006 (second section of a report on the results of a survey for Health Equality Europe). For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • PatientView's May 2006 survey of 155 European patient groups allowed these organisations to contribute their opinions to the results of the Health Consumer Powerhouse 'Euro Health Consumer Index 2006', June 2006. Results published by HCP. http://healthpowerhouse.com/media/RaportEHCI2006en.pdf • The Future of the Human Body series: part 1; part 2: the Computerisation of Healthcare; part 3: Engineering Health; part 4: the Burgeoning Field of Wellness R&D; part 5: Bridging the Poverty Gap, October 2005-February 2006 (series of articles written for, and published by, The Economist .com and Aviva). http://www.economist.com/sponsor/forwardthinking/ • PatientView's May 2005 survey of 105 European patient groups allowed these organisations to contribute their opinions to the results of the Health Consumer Powerhouse 'Euro Health Consumer Index 2005', June 2005. Results published by HCP. http://www.healthpowerhouse.com/media/EHCI2005_EN.pdf • Patients' Perspectives of Healthcare Systems in Europe: a Survey of Health Campaigners, 57 pages, May 2005 (report on the results of a survey for Health Consumer Powerhouse). For a PDF of the report, Click here • Patients' Views of Primary Care in the UK NHS, 183 pages, March 2001 (report for the North Camden Primary Care Group). For a summary of headline findings, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • NHS Electronic-Booking Technology: Getting it Right for Doctors and Patients, 55 pages, July 2003 (report for EDS/A. T. Kearney). For a PDF of the report, Click here • The Future of Medical Technology: 2001-2010, 30 pages, December 2001 (report for Imperial College, London). For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • Improving the Management of Hepatitis B: a Survey of Health Campaigners, 34 pages, March 2005 (report for Sudler and Hennessey). For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • Opinions Held by Specialists on the Primary-Care Management of HIV Patients, 133 pages, April 2002, ISBN 1-904394-00-0 (published in collaboration with the Terrence Higgins Trust and the British HIV Association, London). For a PDF of the report, Click here • Managing HIV: a New Role for GPs?, 109 pages, December 2001 (published in collaboration with the Terrence Higgins Trust, and presented to the Royal College of General Practitioners' Sex, Drugs and HIV Task Group). ------------------------------------------------------------------------------------------------------------------------------------------------- • Hospital-Acquired Infections: the Way Forward, 60 pages, June 2005 (report for the Irish Patients' Association). Published by the IPA. http://www.irishpatients.ie/index.cfm/loc/3-4/pt/0/spid/3BC3E0A7-132F-4ED4-A7D83B817669A15E.htm ------------------------------------------------------------------------------------------------------------------------------------------------- •The Future of the Life Sciences Industries: Transformation Amid Rising Risk • The Future of the Life Sciences Industries: Strategies for Success in 2015, report authored by Alexandra Wyke of PatientView on behalf of The Economist Intelligence Unit; published by Deloitte, 4th quarter 2006. http://www.deloitte.com/dtt/cda/doc/content/2006FutLifScnRptFINAL.pdf • Foreign Drug Companies in India and China: a Comparative View, 6 pages, November 2005 (executive summary to an Economist /Ernst & Young survey). http://graphics.eiu.com/files/ad_pdfs/eiu_wp_ey_pharma_dec_2005.pdf • The Future of the Life Sciences Industries: Ageing Pharmaceuticals and Growing Biotech, 32 pages, January 2005 (white paper to an Economist /Deloitte survey). http://www.deloitte.com/dtt/cda/doc/content/DTT_Lifesciences_survey.pdf ------------------------------------------------------------------------------------------------------------------------------------------------- Local healthcare commissioning •Local Healthcare Commissioning: Grassroots Involvement? The Appendix to the above report contains amalgamated profiling details about the respondent body, plus all respondents’ comments to the survey. For a copy of the National Voices February 2009 press release accompanying the report, please Click here ------------------------------------------------------------------------------------------------------------------------------------------------ Medical research and clinical trials • Patients and researchers: tackling treatment uncertainty together, 12 pages, HSCNews, issue 24, December 2005 (report on part of a James Lind Alliance meeting at the Royal Society of Medicine, December 2005). Also published by the JLA. http://www.lindalliance.org/pdfs/HCSNewsUserinputintomedicalrecordsintheUK.pdf • Results of the Pilot Scheme to Investigate the Feasibility of Collecting Information about Clinical Research from Campaigning Groups, 12 pages, April 2005 (report on the results of a survey for Current Controlled Trials). Published by CCT. http://www.controlled-trials.com/news/HSC_Survey_april05.doc • Confronting Important Uncertainties about the Effects of Treatments, 10 pages, March 2004 (report for the James Lind Alliance). Also published by the JLA. http://www.rsm.ac.uk/new/downloads/hscnews.pdf ------------------------------------------------------------------------------------------------------------------------------------------------- • Mental Health Europe's Action Plan to Fight Discriminatory Practices in Europe, 20 pages, HSCNews, issue 7, May 2004 (report on a Mental Health Europe meeting, Brussels, April 2004). Also published by the Communication Initiative. http://www.comminit.com/strategicthinking/st2005/thinking-950.html ------------------------------------------------------------------------------------------------------------------------------------------------- • Fixing Healthcare: the Professionals’ Perspective For a copy of the report, please click here [link takes you to the Philips GetInsideHealth website, where a simple registration process allows access to the free white paper] ------------------------------------------------------------------------------------------------------------------------------------------------ • MHRA Public Consultation with Patient Representatives: Medicines Information and Advertising, 48 pages, September 2005 (report on the results of a UK survey for the MHRA). For a PDF of the report, Click here • MHRA Public Consultation with Patient Representatives: Medicines Information and Advertising--Appendix, 82 pages, September 2005 (second section of a report on the results of a UK survey for the MHRA). For a PDF of the report, Click here • The Information Needs of Patients with Cancer, 3 pages, CancerFutures, volume 2, issue 1, February 2003 (article for, and published by, CF). http://www.cancerworld.org/CancerWorldAdmin/images/static_modules/images/1428/CF_1_Vol2_33.pdf • Prescription Medicines Information for the Public: a Strategy Document , 62 pages, November 2002, ISBN 1-904394-05-1. For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • The first survey by the QALYity Project, December 2006-January 2007, The QALYity Project sent a questionnaire to national, regional and local patient/health advocacy groups across England and Wales, exploring their opinions on the subject of patients' quality of life. 271 groups responded to the survey. • The second survey by the QALYity Project, March 2007-September 2007, During 2007, PatientView and HSCNews International each carried out a survey of patients on the subject of their quality of life. Generating responses from 3,471 patients, the two surveys together rank among the world's largest on the topic of patients' quality of life. They were also unique in being the first surveys ever in which patients themselves defined what constitutes their quality of life. ------------------------------------------------------------------------------------------------------------------------------------------------- • The Evidence on Patients' Rights in Europe: an Active Citizenship Conference, 10 pages, HSCNews, issue 36, April 2007 (report on the results of a survey on behalf of the Patients Association). For a PDF of the report, Click here • Should the UK National Health Service Take More Account of Patients' Rights?, 42 pages, November 2006 (report on the results of a survey on behalf of the Patients Association). For a PDF of the report, Click here • Public Perception of Patients' Rights Within the NHS, 76 pages, December 2005 (report on the results of a public opinion poll for the Patients' Association). http://www.patients-association.org.uk/publications_level2.asp?level2_ID=251 • Patients' Rights in Europe and the UK, 27 pages, December 2005 (background report for the Patients' Association). For a PDF of the report, Click here • Patients' Rights in Europe: a Citizens' Report, 18 pages, March 2005 (summary of meeting organised by Active Citizenship Network at the European Parliament, Brussels, February 28th to March 1st 2005; report for OxfordVision 2020). http://www.oxha.org/knowledge/publications/oxha_dialogue_patient_rights.pdf ------------------------------------------------------------------------------------------------------------------------------------------------- • The Prevention and Risk Management of Heart Disease and Stroke: the Needs of Patients, 61 pages, December 2006 (report on the results of a survey on behalf of Heart EU). For a PDF of the report, Click here ------------------------------------------------------------------------------------------------------------------------------------------------- • Services for people with rheumatoid arthritis in England For a link to details about the NAO’s completed investigation into RA services in England, please Click here |
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