Health advocacy

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on 0044-(0)1547-520-965, or info@patient-view.com

Health advocacy 2006 - Price £400
Latest developments among the world's health campaigners
HSCNews issue 29 May 2006.pdf
Global
60 pages

Overview:
This report first reflects on the many changes within the health campaigning movement over the past 30 months. A survey of health NGOs examines their views on the future of healthcare. The publication also looks at pharma funding of patient organisations, using the UK as a case study of reform.
For a sample page, CLICK HERE

Contents:
HEALTH ADVOCACY IN 2006: A GLOBAL PROFILE: pages 6-21
--Health campaigners: a profile: page 5
--Who or what are health campaigners? page 6
--The 42 largest health campaigners worldwide--combined wealth US$10 billion: pages 7-8
--Case studies of national partnerships and alliances: pages 9-10
--A 200-billion dollar movement: pages 10-11
--From little acorns: pages 11-12
--Geographic spread: pages 12 and 14
--The joining-up of health campaigning groups in the USA: page 13
--Specialties: page 14
--Achievements: pages 14 and 17
--European multi-stakeholder alliances that include health advocates: page 15
--Health advocates and the WHO: page 16
--The future of the health campaigning movement: pages 18-19
--Patient dissatisfaction: page 18
--American patients as advocates in the fight to improve their own care: page 19
--Health campaigners in 2006: all shapes and sizes: pages 20-21
PHARMA FUNDING OF PATIENT ORGANISATIONS--A UK CASE STUDY OF REFORM: pages 37-43
--The top-20 health campaigners in the UK by revenue: pages 38-39
--Industry/voluntary-sector 'working agreement on sponsorship and joint activities'--the ABPI's model template: pages 42-43
MEMBERS' NEWS: pages 44-49
PUBLICATIONS: pages 50-52
LETTERS: pages 53-58

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Overview:
Between December 2005 and January 2006, HSCNews surveyed 179 health campaigners from around the world about their experiences and activities in 2005, and their plans for 2006. Respondent organisations were asked to outline what they believed were their three top success stories of 2005. The answers clearly indicate that patient, disability, carer and other health-oriented groups made key contributions to the improvement of healthcare worldwide.
For a sample page, CLICK HERE

Contents:
HEALTH CAMPAIGNERS REFLECT ON 2005 AND PLAN FOR 2006: pages 6-25
--What were your organisation's top three achievements during 2005? pages 6-15
--What were the three toughest hurdles your organisation had to overcome in 2005? pages 16-20
--What fundamental internal structural changes took place in your organisation in 2005? pages 21-25
--The importance of disease prevention to your organisation in 2006: pages 26-28
--The importance of disease awareness to your organisation in 2006: pages 29-31
--What interest does your organisation have in campaigns about disease diagnosis in 2006? pages 32-34
--What interest does your organisation have in campaigns about medical treatment in 2006? pages 35-37
--What interest does your organisation have in campaigns about medical research in 2006? pages 38-40
--What interest does your organisation have in campaigns about healthcare provision in 2006? pages 41-43
--What interest does your organisation have in campaigns about information on prescription medicines in 2006? pages 44-46
--What interest does your organisation have in campaigns about information on healthcare regulation in 2006? pages 47-49
--Representation within government committees and other agencies in 2006? pages 50-52
--What interest will your organisation take in the activities of pharmaceutical companies in 2006? pages 53-55
APPENDIX: PROFILE OF RESPONDENTS: pages 56-61

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Overview:
276 patient advocacy groups refer to their activities during 2004 and share their plans for 2005.
For a sample page, CLICK HERE

Contents:
HEALTH CAMPAIGNERS REFLECT ON 2004 AND PLAN FOR 2005: pages 5-48
--About the survey of 276 advocacy groups: page 5
--Background: pages 5-7
--Survey finding: official statistics greatly underestimate the global burden of disease: pages 7, 8 and 12
--Campaigns about specific diseases: page 8
--Disease awareness campaigns: pages 9-11
--Unusual patient group approaches: cafés and reality cinema: page 12
--Campaigns about medical research: page 13
--Survey finding: the funding, direction and quality of medical research is wanting: pages 13, 15, 18 and 20
--Areas where more medical research is needed: page 14
--Medical research and HSCNews in 2004: pages 16-17
--On patient participation: page 18
--Philanthropic research: page 19
--Survey finding: access to, and quality of, both diagnosis and treatment is in need of substantial improvement: pages 21-25
--Campaigns about diagnosis and / or treatments: page 21
--Campaign areas in medical diagnosis: page 22
--Campaigns about healthcare provision: page 26
--Survey finding: healthcare systems should be more equitable and cognisant of the needs of patients: pages 26-30
--Survey finding: more high-quality information needs to be made publicly available: pages 30-35
--Campaigns about publicly-available information: page 31
--Survey finding: health campaigners want more government subsidy of treatments to improve access to new medicines: pages 35-38
--Campaigns about medicines regulation: page 36
--Survey finding: patients, children, families and carers often feel undermined by their doctors and healthcare systems: pages 38-41
--Campaigns about patients' rights: page 39
--Survey finding: clinicians and doctors (and patient organisations themselves) need to develop a more ethical relationship with industry: pages 42-44
--Campaigns about medical suppliers: page 43
--Conclusion: pages 45-48
--Structural changes within health advocacy groups during 2004: page 46
IN FOCUS: GINES GONZALEZ GARCIA--TOWARDS PATIENT EMPOWERMENT IN ARGENTINA: pages 49-51

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Overview:
Detailed breakdown of the 2005 plans of the 276 patient advocacy groups in this global survey.
For a sample page, CLICK HERE

Contents:
WHAT HEALTH CAMPAIGNERS SAID ABOUT THEIR CHALLENGES FOR 2005: pages 5-40
ABOUT THE HEALTH CAMPAIGNERS THAT ANSWERED THE SURVEY: pages 41-43