Funding of health campaigners

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The funding of health campaigners - Price £400
A series of articles on the funding of health campaigners
HSCNews issue 34 January 2007.pdf
Global
52 pages

Overview:
Despite a massive flow of money into the buoyant charity sector during 2006, raising sufficient funds remains a major problem for patient organisations and other health campaigners.
· Pages 6-17 look at why patient organisations, in particular, are turning to big business and pharmaceutical companies for respite. And why such groups have opened themselves up to charges of being in the pocket of pharma.
· Pages 19-26 outline the results of a December 2006 HSCNews mini-poll of 35 health campaigners. These groups discuss why they experience difficulties generating income.
· Pages 27-38 examine patient-group codes of conduct, using five health campaigners as case studies. The five have tried to resolve the tensions inherent in retaining independence and accepting sponsorship. The article analyses how the codes of conduct differ, and notes some outstanding questions that need to be answered. The five groups are:
- European Organization for Rare Diseases (Eurordis).
- Myeloma Euronet.
- Depression Bipolar Support Alliance (DBSA).
- Consumers' Health Forum of Australia (CHF).
- H E A R T UK.
· Pages 39-47 give two case studies: the Italian Lega Italiana Fibrosi Cistica, and the Californian Taproot Foundation. The two organisations have, for the most part, overcome (for themselves, at least) the problems of financial turbulence that plague many health groups.
· Pages 48-50 carry a letter from two convenors of the Australian group Children of Mentally-Ill Consumers, who comment on one aspect of the burgeoning international carers' movement [covered in HSCNews, issue 33].
For a sample page, CLICK HERE

Contents:
THE FUNDING OF HEALTH CAMPAIGNERS 2006-2007: pages 6-44
--Introduction: a focus on the funding of health campaigners 2006-2007: pages 5-13
--Money flows south: pages 7-8
--Government clawbacks: pages 8-9
--Greater competition: pages 9-10
--Volunteering: pages 10-11
--Public giving: pages 11-12
--Members/business: pages 12-13
--Conclusion: page 13
--A list of the world's largest health campaigners, ranked by funding: pages 14-17
WHAT HEALTH CAMPAIGNERS SAY ABOUT FUNDING IN 2006-2007: A MINI-POLL: pages 19-26
--Money troubles: pages 19, 20, 22 and 23
--Financial low points in 2006: page 21
--Independently poor, collectively rich: page 23
--Ethical funding: pages 23-25
--Members as funders: pages 25-26
--Fundraising in 2007: page 26
CODES OF CONDUCT: THE WAY FORWARD? pages 27-38
--A negative press: page 27
--Codes of conduct case study: European Organization for Rare Diseases: pages 29-30
--Codes of conduct case study: Myeloma Euronet: page 31
--Codes of conduct case study: Consumers' Health Forum of Australia: pages 32-33
--Codes of conduct case study: Depression and Bipolar Support Alliance Australia: page 34
--Codes of conduct case study: H·E·A·R·T UK: page 35
--More questions than answers: pages 36-38
--A code of conduct for UK pharma: page 38
THE LEGA ITALIANA FIBROSI CISTICA AND FUNDING: pages 39-44
MEMBERS' NEWS: THE TAPROOT FOUNDATION: A FUNDING ORGANISATION: pages 45-47

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Overview:
An examination of the Annual Reports of 125 high-profile health NGOs worldwide, looking at sources of income, levels of income, and fundraising activities pre 2005.
For a sample page, CLICK HERE

Contents:
FUNDING OF HEALTH CAMPAIGNERS: A GLOBAL REVIEW OF THE ANNUAL REPORTS OF 125 NGOs: pages 6-27
--Introduction: pages 6-9
--Several shortcomings in the Annual Reports: page 9
--Fundraising for NGOs was tough: pages 10-11
--A bequest can have disadvantages: page 10
--Top 25 health campaigners, ranked by revenue: page 12
--Tackling austerity: pages 13-16
--Donations from the tobacco industry: page 14
--Taking money from pharma: pages 16, 21 and 23
--Pharma companies are major donors: where do they donate their money, and why? pages 17-20, and 22
--Weblinks to examples of policies on ethical pharma funding: page 23
--Winds of change: pages 23 and 26
--125 health campaigners are asked about their own stance on pharma funding: pages 24-25
--Pharma companies and the December 2004 tsunami: a new sort of philanthropy: page 27
IN FOCUS: THE DEPRESSION AND BIPOLAR SUPPORT ALLIANCE ON PHARMACEUTICAL FUNDING: pages 28-30
EVENTS
--The Learning Disabilities Association of America: page 32
--Patients' Rights Advocacy Waikato Inc: page 33
MEMBERS' NEWS
--Canada's ALS Society presents a successful fundraising technique: pages 35-36
--preliminary results of a European survey of people with HIV/AIDS: page 37
--An new European organisation specialising in reducing cholesterol-induced damage to health: pages 38-39
PUBLICATIONS: Rebecca Libutti and advice for patients with brain cancer [USA]: pages 40-43
RESEARCH: A letter to the WHO requesting a reformed system of medical R&D: pages 44-46
LETTERS: Angela Dickson: pages 47-49

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Overview:
Detailed listing of the financial results of health advocates pre 2005, including major corporate donors from the healthcare sector. Health advocates ranked by size of revenue within each country.
For a sample page, CLICK HERE

Contents:
DETAILED LISTING OF THE FINANCIAL RESULTS OF HEALTH ADVOCATES PRE 2005. NGOS ASSESSED FOR FINANCIAL OVERVIEW; ANNUAL INCOME; CHANGE FROM PREVIOUS YEAR; OVERHEADS AS PERCENTAGE OF REVENUE; SOURCES OF FINANCE; DONORS