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Health campaigners' latest views on publicly-available healthcare information
HSCNews issue 31 August 2006.pdf
Global
60 pages
Overview:
This issue of HSCNews is based on the results of an HSCNews survey of 192 patient advocacy groups worldwide, conducted during summer 2006. The survey attempted to discover which healthcare information health campaigners currently believe the public needs, how that information should best be delivered, what determines whether the public regards the information as trustworthy, and who should be providing the information. Also explored were campaigners' very latest feelings about a subject of continued contention--pharmaceutical companies supplying healthcare information to the public.
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Contents:
INFORMATION FOR PATIENTS AND THE PUBLIC: A GLOBAL SURVEY OF HEALTH CAMPAIGNERS' OPINIONS ON THE SUBJECT: pages 5-44
--Key findings: page 6
--Summary of findings: pages 7-11
--Why do patients need better information? page 8
--How well does the healthcare information available in your country meet the needs of the people you represent? pages 12-13
--What do you think should be the top three goals of any publicly-available healthcare information service in your country? pages 14-15
--Can you suggest case studies from your country that fulfil any of the goals? pages 16-17
--Valuable online sources of information cited by respondents: page 18
--Do you believe that your country's patients/public require better publicly-available information on any of the topics listed below? pages 19-20
--Do you believe that the current forms by which publicly-available information are transmitted can satisfy the needs of your country's patients and public? pages 21-22
--Do you believe that your country's patients/the public are likely to get more or better information if any of the following relatively new delivery tools becomes widely used? pages 23-24
--Do any of the following qualities help make your country's publicly-available information trustworthy? pages 25-26
--When any of the following recommend a source of information, whose recommendation are your country's patients and the public most likely to trust? pages 27-28
--Which sources of information do you believe could best fulfil the needs of your country's patients/the public outside the clinical setting? pages 29-31
--Should pharma be able to supply prescription medicines information to your country's patients/public, if the information goes through any of the following as an accredited third-party? pages 32-33
--Do any of the following circumstances offer a valid reason for pharma to supply information on prescription medicines to your country's patients/public? pages 34-36
--The survey's questionnaire: pages 37-40
--Respondent groups that wish to be named: pages 41-42
--Profile nof respondents: pages 43-44
MEMBERS' NEWS ABOUT HEALTH INFORMATION: pages 45-47
--A major resource to improve patient information [UK]: page 46
--Satellife merges with another group [US]: page 47
CAMPAIGNS: A push for renewed funding for an adverse events line [Australia]: pages 48-50
RESEARCH ON PATIENT INFORMATION: pages 51-54
--"How Americans find and use cancer information" [US]: pages 52-53
--All quiet on the education front [UK]: page 54
SEVEN WEBSITES DEDICATED TO THE PROVISION OF HEALTHCARE INFORMATION OR TO CAMPAIGNING FOR ITS PROVISION: pages 55-57