Medical research and clinical trials

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Health campaigners and medical research - Price £400
The influence that health campaigners exert upon medical research
HSCNews issue 28 April 2006.pdf
Global
60 pages

Overview:
Almost every stage of medical research today is (at least in part) influenced by patients and the public -- from the moment when scientists decide their research priorities, to the highlighting of patients' adverse reactions to medicines. This issue of HSCNews International gathers together some (but no means all potential) examples of how health campaigners and citizens are changing the face of medical research.
For a sample page, CLICK HERE

Contents:
HEALTH CAMPAIGNERS AND THE FUTURE OF MEDICAL RESEARCH: pages 5-58
Areas of medical research into which citizens and health campaigners input: page 6
--Civic involvement: pages 7-8
--Public/patient consultation: pages 8-9
--Lobbying the European Community on FP7: pages 10-12
--Gaining potency by forming coalitions: pages 12-15
--Studies: medical treatments from patients' perspectives: page 14
--Defining treatment uncertainties: pages 15 and 17
--Clinical trials: page 16
--Monetary and other resources: pages 17-18
--Appropriate treatment: pages 18-20
--Reporting adverse drug effects: page 20
--Three interviews: page 21
A GLOBAL FRAMEWORK FOR MEDICAL R&D? pages 22-31
--Profound flaws in the state of medical research: pages 22-23
--The influence of industry: pages 23-24
--European and US policy: pages 24-26
--An American solution to inequitable R&D: pages 26-27
--Patents in poor countries: pages 27-28
--The way forward: pages 28-29
--Proposal by Kenya and Brazil: page 29
--Useful tools to promote equitable R&D: pages 29-31
CAMPAIGNING FOR GENETIC RESEARCH: pages 32-35
CAMPAIGNING FOR ETHICAL ANIMAL TESTING: pages 36-41
EVENTS RELATED TO MEDICAL RESEARCH: pages 42-53
PUBLICATIONS ON MEDICAL RESEARCH: pages 54-58

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Overview:
An introduction to the subject of clinical trials registration, and how it might be important to patients; a list of patient organisations that provide information on their websites about current clinical trials; followed by detailed interviews with three people from around the world who have expertise in the patient perspective on clinical trials.
For a sample page, CLICK HERE

Contents:
REGISTERING CLINICAL TRIALS: THE VIEWS OF THREE KEY HEALTH CAMPAIGNERS: pages 5-40
--Introduction: pages 5-11
--Patient organisations that provide information on their websites about current clinical trials: pages 12-14
--Interview: Iain Chalmers of the James Lind Alliance: pages 15-21
--Interview: Jan Geissler of the European Cancer Patient Coalition: pages 22-31
--Interview: Ann Fonfa of the Annie Appleseed Project: pages 32-38
--List of key events in the USA affecting policy on clinical trials registration: pages 39-40
MEMBER'S NEWS: pages 41-43
RESEARCH: pages 44-47
PUBLICATIONS: pages 48-51
WEBSITES: pages 51-53
EVENTS: pages 54-57
LETTERS: pages 58-62

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Overview:
An examination of the state of play on identifying methods for allowing medical R&D to look at neglected diseases. Public-private partnerships, the rewriting of patent law, and government efforts at filling the gaps in R&D are all considered.
For a sample page, CLICK HERE

Contents:
FROM MARKET-DRIVEN TO NEEDS-DRIVEN R&D: pages 5-27
--Background: pages 5-8
--The challenge ahead: page 8
--Identifying priorities: pages 9-12
--HIV and children's formularies: the example of Mozambique: pages 10-11
--Identifying solutions: pages 13-22
--Concluding debate: pages 22-26
--Earlier articles by HSCNews on the subjects of affordable medicines, neglected diseases and R&D: page 27
MEMBERS' NEWS: pages 28-31
PUBLICATIONS: pages 32-36
NEW WEBSITES: page 38
EVENTS: pages 39-41