Carers

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The rise and rise of the international carers' movement - Price £400
A once-overlooked sector flexes new muscles
HSCNews issue 33 November 2006.pdf
Global
44 pages

Overview:
The healthcare systems of virtually every nation are struggling to meet the demands placed upon them. Carers help these systems by functioning as low- or un-paid healthcare workers, yet society remains stubbornly unaware of carers' pivotal role. Policymakers often fail to incorporate them in healthcare decision-making; doctors object to including carers in discussions about the healthcare of the person under their care. The international carers' movement, however, has achieved major successes in its two-and-a-half-decade lifespan. The plight of carers is no longer unknown; today, it is in the media spotlight, and subsequently in the political domain. Many countries have assumed legal responsibilities to compensate and support the people who devote part (or all of their life) to caring for someone close to them. The movement has crossed the north-south divide, and is expanding into developing nations. As one carers' campaigner points out: "The whole subject of family care is going to explode".
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Contents:
THE RISE AND RISE OF THE CARERS' MOVEMENT: pages 6-36
--Out from the shadows: pages 7, 8 and 11
--Examples of national carers' groups worldwide: pages 9-10
--Changing demographics: pages 11-14
--On dementia: page 14
--A carers' crisis in India: page 15
--Costing the carers' phenomenon: pages 15-17
--Dementia and carers: page 16
--Facilities that carers need: page 18
--Carers' rights in the UK: page 19
--Australia's potent carers' movement: page 20
--The 1991 Carers' Rights Charter proposed by Caring for Carers Ireland: page 21
--A rights-based carers' movement: pages 21-22
--Eurofamcare's draft European Carers' Charter: nine carers' rights: page 22
--Conclusions: pages 22-23
--In the USA: page 23
FOUR ORGANISATIONS GIVE THEIR VIEWS ON THE CARERS' MOVEMENT: pages 26-36
--Jean Georges: a view from Alzheimer Europe: pages 26-28
--Liam O'Sullivan: a view from Care Alliance Ireland: pages 29-30
--K. R. Gangadharan: a view from the Heritage Hospital, Hyderabad: pages 31-33
--Gail Hunt: a view from the International Alliance of Carers Organizations: pages 34-36
MEMBERS' NEWS ON CARERS: PAGES 38-40
--An initiative on carer information in Scotland: page 39
--Northern Ireland carer group wins an award for its family-carer training programmes: page 40
RESEARCH ON CARERS: COFACE undertakes a carers project [Belgium]: page 42