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PatientView Projects
Many of the reports, articles and publications listed below are available in the public domain, and can be downloaded at will, either off this site or from those of other organisations. Some of the remaining reports and publications are available for purchase, while a handful are proprietary to other organisations. Please email us if you would like further details on a listed publication. 2007 • Drafting of two strategy reports: healthcare and pharmaceutical companies. On behalf of The Economist Intelligence Unit and Deloitte; ongoing. • Survey of patient organisations' views on the user-friendliness of national healthcare systems across Europe; ongoing (May-August 2007). On behalf of Health Consumer Powerhouse's Euro Health Consumer Index 2007. Results due to be published by HCP in September 2007.• Survey of UK Patients' Opinions on their Quality of Life; ongoing (March-May 2007). This study is examining what patients mean when they refer to their quality of life (QoL). For the QALYity Project, a recently-founded UK-based alliance of prestigious patient groups, doctors, academics, and journalists. The QALYity Project aims to develop advice that can help patients improve the quality of their lives, Click Here.) • Participation in the Asthma and Patient-Centered Care Study, February-March 2007 (Germany, Italy and UK arms of the survey). This survey by the Health Leadership Institute, McMaster University, Canada, and administered by Ward Health Strategies, attempts to find out how active a role asthma patients in several countries are taking in their own healthcare. • Survey of European Patient Groups' Opinions on Counterfeit Medicines. This study was inspired by the World Health Organisation's February 2006 international framework convention on counterfeit medicines. Respondent groups have been sent their copy of the survey results. The study is due to be launched in late-Summer 2007. Conducted in conjunction with Together4Health and Pfizer.2006 • The Prevention and Risk Management of Heart Disease and Stroke: the Needs of Patients, 61 pages, December 2006 (report on the results of a survey on behalf of Heart EU). For a PDF of the report, Click here • Should the UK National Health Service Take More Account of Patients' Rights?, 42 pages, November 2006 (report on the results of a survey on behalf of the Patients Association). For a PDF of the report, Click here • Patient Group Analysis for PhRMA's EU Alliance Development Task Force , 88 pages, October 2006 (report on the results of three surveys to determine the views of pan-European, German and Italian groups on the present condition and the future of advocacy in their countries, and EU governance and the regulatory environment. Conducted in conjunction with Burson-Marstellar). • The Future of the Life Sciences Industries: Strategies for Success in 2015, report authored by Alexandra Wyke of PatientView on behalf of The Economist Intelligence Unit; published by Deloitte, 4th quarter 2006. http://www.deloitte.com/dtt/cda/doc/content/2006FutLifScnRptFINAL.pdf • The Rights of Children to Appropriate Healthcare: A Global Survey. Survey conducted during Summer 2006 on behalf of Professor Manfred Götz, Department of Child and Youth Medicine, Wilhelminenspital, Vienna, Austria. Survey report published December 2006. For a PDF of the report, Click here• PatientView's May 2006 survey of 155 European patient groups allowed these organisations to contribute their opinions to the results of the Health Consumer Powerhouse 'Euro Health Consumer Index 2006', June 2006. Results published by HCP. http://healthpowerhouse.com/media/RaportEHCI2006en.pdf • Challenges Facing the Health Advocacy Community: a Europe-Wide Survey of Health Campaigners, 68 pages, April 2006 (first section of a report on the results of a survey for Health Equality Europe). For a PDF of the report, Click here • Challenges Facing the Health Advocacy Community: the Views of Policymakers and the Media, 34 pages, April 2006 (second section of a report on the results of a survey for Health Equality Europe). For a PDF of the report, Click here • Leaders of the Revolution: Consumer-Driven Healthcare, 3 pages, Scrip Magazine, issue 155, April 2006 (article written for, and published by Scrip). • Networking exercise among European patient organisations for the European Medicines Agency's 'Working Group with Patients' Organisations', March 2006.
• The Patient Movement as Healthcare Lobbyists, February 2006 onwards (series of monthly articles for, and published by, The Healthcare Lobbyist). • The Future of the Human Body series: part 1; part 2: the Computerisation of Healthcare; part 3: Engineering Health; part 4: the Burgeoning Field of Wellness R&D; part 5: Bridging the Poverty Gap, October 2005-February 2006 (series of articles written for, and published by, The Economist .com and Aviva). http://www.economist.com/sponsor/forwardthinking/
• Public Perception of Patients' Rights Within the NHS, 76 pages, December 2005 (report on the results of a public opinion poll for the Patients' Association). http://www.patients-association.org.uk/publications_level2.asp?level2_ID=251 • Patients' Rights in Europe and the UK, 27 pages, December 2005 (background report for the Patients' Association). For a PDF of the report, Click here • Patients and researchers: tackling treatment uncertainty together, 12 pages, HSCNews, issue 24, December 2005 (report on part of a James Lind Alliance meeting at the Royal Society of Medicine, December 2005). Also published by the JLA. http://www.lindalliance.org/pdfs/HCSNewsUserinputintomedicalrecordsintheUK.pdf • Foreign Drug Companies in India and China: a Comparative View, 6 pages, November 2005 (executive summary to an Economist /Ernst & Young survey). http://graphics.eiu.com/files/ad_pdfs/eiu_wp_ey_pharma_dec_2005.pdf • Understanding the Cancer Patient Movement: Facts, Figures, and Analyses, 60 pages, September 2005 (a PatientView report). For a PDF of the report, Click here • MHRA Public Consultation with Patient Representatives: Medicines Information and Advertising, 48 pages, September 2005 (report on the results of a UK survey for the MHRA). For a PDF of the report, Click here • MHRA Public Consultation with Patient Representatives: Medicines Information and Advertising--Appendix, 82 pages, September 2005 (second section of a report on the results of a UK survey for the MHRA). For a PDF of the report, Click here • PatientView's May 2005 survey of 105 European patient groups allowed these organisations to contribute their opinions to the results of the Health Consumer Powerhouse 'Euro Health Consumer Index 2005', June 2005. Results published by HCP. http://www.healthpowerhouse.com/media/EHCI2005_EN.pdf • The Cancer Patient Movement: Facts, Figures, and Analyses, 58 pages, September 2005 (compiled from PatientView database and archives as a special commission). • Hospital-Acquired Infections: the Way Forward, 60 pages, June 2005 (report for the Irish Patients' Association). Published by the IPA. http://www.irishpatients.ie/index.cfm/loc/3-4/pt/0/spid/3BC3E0A7-132F-4ED4-A7D83B817669A15E.htm • Patients' Perspectives of Healthcare Systems in Europe: a Survey of Health Campaigners, 57 pages, May 2005 (report on the results of a survey for Health Consumer Powerhouse). For a PDF of the report, Click here • Expert participation at Stakeholder Consultation Workshop, Ambient Assisted-Living Project for the Ageing Population, May 2005, Brussels, Information Society and Media Directorate-General, European Commission. • Results of the Pilot Scheme to Investigate the Feasibility of Collecting Information about Clinical Research from Campaigning Groups, 12 pages, April 2005 (report on the results of a survey for Current Controlled Trials). Published by CCT. http://www.controlled-trials.com/news/HSC_Survey_april05.doc • Improving the Management of Hepatitis B: a Survey of Health Campaigners, 34 pages, March 2005 (report for Sudler and Hennessey). For a PDF of the report, Click here • Patients' Rights in Europe: a Citizens' Report, 18 pages, March 2005 (summary of meeting organised by Active Citizenship Network at the European Parliament, Brussels, February 28th to March 1st 2005; report for OxfordVision 2020). http://www.oxha.org/knowledge/publications/oxha_dialogue_patient_rights.pdf • The Future of the Life Sciences Industries: Ageing Pharmaceuticals and Growing Biotech, 32 pages, January 2005 (white paper to an Economist /Deloitte survey). http://www.deloitte.com/dtt/cda/doc/content/DTT_Lifesciences_survey.pdf
• Patient Views: DTC Advertising, 3 pages, International Journal of Medical Marketing, volume 4, no 4, September 2004 (article for, and published by the IJMM). • Mental Health Europe's Action Plan to Fight Discriminatory Practices in Europe, 20 pages, HSCNews, issue 7, May 2004 (report on a Mental Health Europe meeting, Brussels, April 2004). Also published by the Communication Initiative. http://www.comminit.com/strategicthinking/st2005/thinking-950.html • Confronting Important Uncertainties about the Effects of Treatments, 10 pages, March 2004 (report for the James Lind Alliance). Also published by the JLA. http://www.rsm.ac.uk/new/downloads/hscnews.pdf • How Well Does the Medicines and Healthcare Products Regulatory Agency (MHRA) Communicate with Your Organisation?, 30 pages, February 2004 (report for the MHRA).
• NHS Electronic-Booking Technology: Getting it Right for Doctors and Patients, 55 pages, July 2003 (report for EDS/A. T. Kearney). For a PDF of the report, Click here • Patient Information and European Directives: the Significance for Patients and Patient Groups, 95 pages, June 2003, ISBN 1-904394-07-8 (report for the Health Coalition Initiative). • Patient Information on Prescription Medicines: a Global Perspective, 20 pages, June 2003 (compiled from the PatientView database and archives as a special commission). • Information for Patients with Cancer, 92 pages, May 2003, ISBN 1-904394-06-X. For a PDF of the report, Click here • Information Needs of Patients with Cancer, 82 pages, March 2003 (workbook for a cancer patient group workshop). For a PDF of the workbook, Click here • The Information Needs of Patients with Cancer, 3 pages, CancerFutures, volume 2, issue 1, February 2003 (article for, and published by, CF). http://www.cancerworld.org/CancerWorldAdmin/images/static_modules/images/1428/CF_1_Vol2_33.pdf • What Patients with Cancer Think of Information on Prescription Medicines, 88 pages, January 2003, ISBN 1-904394-04-3. • What do Patients Want from Pharma?, 4 pages, Novartis Magazine, issue 2, January 2003 (article for, and published by, the magazine).
• Prescription Medicines Information for the Public: a Strategy Document , 62 pages, November 2002, ISBN 1-904394-05-1. For a PDF of the report, Click here • Direct-to-Consumer Prescription Drug Information in the UK, 38 pages, November 2002 (workbook for a patient group workshop conducted in collaboration with IAPO). • The Views of Netherlands-Based Patient Groups on the Patient Information Debate, 104 pages, October 2002, ISBN 1-904394-03-5 (published in collaboration with IAPO). Available from PJB Publications on http://www.pjbpubs.com/cms.asp?pageid=1376 • The Views of UK-Based Patient Groups on the Patient Information Debate , 105 pages, August 2002, ISBN 1-904394-02-7 (published in collaboration with IAPO). Available from PJB Publications on http://www.pjbpubs.com/cms.asp?pageid=1376 • Involving Primary-Care Physicians in HIV Care in the UK: What Doctors Say, 1 page, July 2002 (poster published in collaboration with the Terrence Higgins Trust, Barcelona AIDS conference 2002, illustrating some of the findings of PatientView's two 200-2001 surveys of London GPs). • Should GPs Manage HIV Care?, 2 pages, Health Management, June-July 2002, volume 6, issue 5 (article for, and published by, HM ). • The Views of EU-Based Patient Groups on the Patient Information Debate, 145 pages, June 2002, ISBN 1-904394-01-9 (published in collaboration with IAPO). Available from PJB Publications on http://www.pjbpubs.com/cms.asp?pageid=1376 • Opinions Held by Specialists on the Primary-Care Management of HIV Patients, 133 pages, April 2002, ISBN 1-904394-00-0 (published in collaboration with the Terrence Higgins Trust and the British HIV Association, London). For a PDF of the report, Click here
• Managing HIV: a New Role for GPs?, 109 pages, December 2001 (published in collaboration with the Terrence Higgins Trust, and presented to the Royal College of General Practitioners' Sex, Drugs and HIV Task Group). • The Future of Medical Technology: 2001-2010, 30 pages, December 2001 (report for Imperial College, London). For a PDF of the report, Click here • Patient-Focused Healthcare: Assessing Patient Opinions of Primary Healthcare Systems can Help Managers Improve Delivery, 1 page, Health Management, November 2001, volume 5, issue 9 (article for, and published by, HM). • Patients' Views of Primary Care in the UK NHS, 183 pages, March 2001 (report for the North Camden Primary Care Group). For a summary of headline findings, Click here |
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