Dissemination

'Speeches'

Alexandra Wyke, speech, "Utilising patient compliance strategies for clinical trials", 3rd Annual Forum on Patient Adherence, Compliance and Persistency: Increase Product Utilisation through Improved Patient Communication Strategies, Holiday Inn, Chaussee de Charleroi, Brussels, Belgium, Tuesday October 24 2006.

Alexandra Wyke, speech, "Understanding patient communication regulation across Europe: what can pharma companies do in terms of patient communication?" , 3rd Annual Patient Compliance Conference Europe, Amsterdam Marriott Hotel, Amsterdam, the Netherlands, Thursday June 1 2006.

Alexandra Wyke, "Patient perceptions of electronic medical records: a global survey", speech, World Health Care Innovation and Technology Congress: 'Innovation to Transform', Marriott Wardman Park Hotel, Washington DC, USA, Wednesday November 9 2005.

Alexandra Wyke, "New models for engaging patients: usurping public-private partnerships (PPPs)", speech, Center for Business Intelligence's 2nd Annual Patient Compliance, Persistency and Disease Management Conference, Radisson Hotel, Amsterdam, the Netherlands, Monday September 19 2005.
http://www.cbinet.com/show_conference.cfm?confCode=HB564&field=dayone

Alexandra Wyke, Congress Advisory Board, European Health Care Congress: Best practices for improved delivery and solutions, Les Fontaines Conference Centre, Paris, France, Monday April 11 - Tuesday April 12 2005.
http://www.worldcongress.com/europe/advisory_board.cfm

Alexandra Wyke, chair, "Patients' Rights in Europe: A Citizens' Report-Monitoring the European Charter of Patients' Rights", Active Citizenship Network (ACN), Paul Henry Spaak Building, European Parliament, Brussels, Belgium, Monday, February 28 2005.
http://www.activecitizenship.net/home.html

Alexandra Wyke, "Cancer patients and their rights to information in the EU", speech, 1st Summit of Cancer Patients Advocacy Groups in Central and Eastern Europe: 'Can Patients Cure a Healthcare System?', Sofitel Victoria Hotel, Warsaw, Poland, Saturday, November 27 2004.

Alexandra Wyke, "Engaging the family in healthcare: Using e-technologies to interact with patients and the public (the results of a global survey by Health and Social Campaigners' Network, September 2004)", speech, eHealth 2004 Clinical Information Systems and Electronic Records Conference, London West Convention Centre, London, UK, Thursday, September 30 2004.
http://www.healthcare-events.co.uk/conferences/confdisplay.asp?id=262

Alexandra Wyke,"Spreading the word: how health campaigners can disseminate key ideas to a wider audience", speech, Mental Health Europe European Seminar: 'Harassment and Discrimination Faced by People with a Pychosocial Disability in Health Services', Brussels, Belgium, April 23 2004.

Alexandra Wyke, "What drug information do patients want? UK and European issues", speech, Centre for Health Information Quality Conference: 'Better Information, Better Communication in Healthcare', London, UK, February 4 2004.

Alexandra Wyke, "The patient's view and ethical considerations of medical technology", speech, International Workshop: 'New Generation of Wearable Systems for Health', University of Pisa, Italy, December 13 2003.

Alexandra Wyke, "Patient information on prescription medicine: a global perspective", Barcelona, Spai n, June 27 2003.

Alexandra Wyke, "Summary of the meeting", speech, Health Coalition Initiative/Long term Medical Conditions Alliance/Gamian Europe/PatientView/IBM Workshop Seminar: 'Patient Information, European Directives - the Meaning for UK Patients and Patient Groups', London, UK, May 12 2003.

Alexandra Wyke, "Why do patients want more prescription information?", speech, 5th Annual Direct-to-Consumer Pharmaceutical Marketing and Communication Forum, Warwickshire, UK, April 3 2003.

Alexandra Wyke, panel member, "Healthcare systems of the future", 2nd Global Medical Forum, Zurich, Switzerland, March 24 2003.

Alexandra Wyke, "Patient perspective on information", speech, Journalists' Seminar, The Vienna Educational Symposium on Cancer Anaemia Management, Vienna, Austria, March 20 2003.

Alexandra Wyke, "The priorities for patients in Europe", speech, 15th Annual Drug Information Association (DIA) EuroMeeting, Rome, Italy, March 7 2003.

Alexandra Wyke, "Should pharmaceutical companies supply the public with more prescription drug information? The views of EU-based patient groups", speech, The Future Patient Conference, Brussels, Belgium, November 15 2002.

Alexandra Wyke, "Should pharmaceutical companies supply the public with more prescription drug information? The views of EU-based patient groups", speech, Journalists' Seminar, Brussels, Belgium, October 10 2002.

Alexandra Wyke, "Should pharmaceutical companies supply the public with more prescription drug information?", speech, e-healthcare conference, Zurich, Switzerland, October 4 2002.

Alexandra Wyke, "Understanding the effects of direct-to-consumer prescription drug advertising", speech, 21st International Federation of Pharmaceutical Manufacturers Associations (IFPMA) Assembly, Berlin, Germany, October 1 2002.

Alexandra Wyke, "Should pharmaceutical companies supply the public with more prescription drug information? The views of EU-based patient groups - a collaborative project between IAPO and PatientView", speech, Special Session, European Health Forum Gastein, Bad Hofgastein, Austria, September 26 2002.

Alexandra Wyke, "Should direct-to-consumer prescription drug advertising be allowed?", speech, 5th Pharmacological Conference, Foundation for Scientific Culture, Erice, Sicily, May 12 2002.

Alexandra Wyke, "The e-health consumer and the pharmaceutical industry", speech, e-healthcare consumer forum, INSEAD, Fontainebleau, France, June 9 2000.
http://www.insead.fr/events/e-health/presentations.htm

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Coverage of some of PatientView's projects

What Patients with Cancer Think of Information on Prescription Medicines

√ Pharma Marketletter
Survey reveals need for more medicines information to cancer patients
May 26 2003, page 25
"The study, conducted by UK group PatientView, has revealed how much patients desire more information about their prescription medicines. A [PatientView] meeting convened to discuss the findings, attended by patient groups, academia, medical professionals, media and industry representatives, has concluded that cancer patients know surprisingly little about the options available for improving their quality and length of life."

√ The Pharmaceutical Journal: Briefly
Patients want more information
Vol 270, 24 May 2003, page 713
"A comprehensive policy on the provision of information to cancer patients is needed, according to the organisation PatientView."

√ Alzheimer Europe
European Patients' Forum presented at PatientView Meeting in Vienna
March 21 2003
"At a meeting on the information needs of cancer patients organised by PatientView in Vienna, the Executive Director of Alzheimer Europe presented the newly-created European Patients' Forum, as well as the views expressed by a number of EPF members on the pharmaceutical review."
http://www.alzheimer-europe.org/?lm4=10536A65274F

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Should Pharmaceutical Companies Supply the Public with More Information on Prescription Medicines? The Views of UK-Based Patient Groups

√ SCRIP: Daily News Alert
UK patients want more pharma info
November 25, 2002
"Some patient groups would like to see pharmaceutical companies supplying the public with more information about prescription medicines, according to a recent survey by PatientView."

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Should Pharmaceutical Companies Supply the Public with More Information on Prescription Medicines? The Views of EU-Based Patient Groups

√ Communiqué: Feature
The time is now: confusion over DTC is resulting in missed opportunities for pharma
Vol 12, July-December 2003, page 53
"Alex Wyke, MD, PatientView, says: ‘Two thirds of patients feel that they should have the same information as doctors. Patients feel that access to information is a right, not a concession’."
http://www.pmlive.com/pharm_market.cfm?showArticle=1&ArticleID=2170

√ Picker Institute Europe website
News: New publications: Recently published books and reports:
WHAT PATIENTS WANT–A Summary of the Future Patient Conference:
14-15 November 2002
'The role of pharmaceutical companies in providing information to patients'–PatientView, page 5; Speaker biographies–Dr Alexandra Wyke, page 15;
List of participating organisations–PatientView, page 18. http://www.pickereurope.org/news/European_Patient_of_the%20future_what_patients.pdf

√ European Health Forum Gastein
5th EUROPEAN HEALTH FORUM GASTEIN
" Common Challenges for Health and Care"
25-28 September 2002
PatientView and the International Alliance of Patients' Organisations co-presented a parallel forum, 'Should pharmaceutical companies supply the public with more information on prescription medicines?'
http://www.ehfg.org/website02/sis.htm

√ Pharmaceutical Marketing
Patients call for good advice
September 2002
"Patients want information about their treatments and they want drug companies to supply it - albeit with strict controls on medication."

√ The Patients' Network
Letter from the CEO
Summer 2002
"We hope that the publication of the report will ensure that the views and opinions of many and diverse patients' organizations will be heard in the debate."
http://www.patientsorganizations.org/tpn/tpn7ena.pdf

√ The Regulatory Affairs Journal
Prescription medicine information for the public: a new report
August 2002
"This report provides the opportunity for the views of patients to be aired on one particular aspect of the legislation - whether direct-to-consumer information should be provided on prescription medicines by pharmaceutical companies."

√ Medical Indemnity Register News
EU patients do not trust doctors and pharmacists
Summer 2002
"As many as one third of patients in the EU do not always trust their doctors to give good information on prescription medicines."

√ KHIDI (Korean Health Industry Development Institute) - Europe
Health Industry News in Europe: Special Report
EU patients do not trust doctors and pharmacists to give satisfactory information on prescription drugs
June 30, 2002
"A major new survey carried out by independent healthcare consultancy PatientView, in collaboration with the International Alliance of Patients' Organizations (IAPO), found that patients in Portugal have the most faith in their doctors, with 82% highly trusting their doctors to give reliable information on prescription drugs."
http://www.khidi.or.kr

√ Butterworths Law Direct: News & features
Patients' right to access information
June 28, 2002
"Plans to relax EU regulations that previously prohibited the promotion of prescription medicines directly to the public are welcomed by patient groups."

√ Financial Times: National News
Patients urge change in law on pharmaceuticals
By Patrick Jenkins - June 18, 2002
"European patients want legislation barring them from receiving product
information directly from pharmaceuticals companies to be overturned..."

√ BBC News Online
Patients 'don't trust medical advice'
Friday, June 14, 2002, 15:03 GMT 16:03 UK
"Almost half of British patients do not trust their doctor to give them reliable information on medication."
http://news.bbc.co.uk

√ Pharmafocus: News story
European DTC war of words declared
Thursday, June 6, 2002
"The war of words over European direct-to-consumer advertising has been re-ignited as MEPs consider proposals to de-regulate the field."
http://www.pharmafile.com

√ EMEA—the European Agency for the Evaluation of Medicinal Products
Report from the 1st EMEA/CPMP Workshop with Patients' Organisations: 'Information and Participation'
31May 2002
The EMEA organised a workshop with representatives of seven European patients' and consumers' organisations. The objectives of this workshop were to reinforce communication with patients' representatives, to exchange views on information related to medicinal products and to further explore contributions to regulatory activities. Keynote results of the PatientView EU-wide DTCI patient group survey can be found in a six-page pdf at
http://www.emea.eu.int/pdfs/human/patientgroup/presentation14.pdf

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Treatment Options in Primary Care for Patients with HIV: the Specialist View

√ House of Commons Select Committee on Health
Third Report: 6. Treatment and Service Provision HIV/AIDS Services
May 22, 2003
"Number 166. The Terrence Higgins Trust and PatientView conduc ted a survey which found that GPs were reporting problems collaborating with specialist HIV services and also understanding the complex issues around confidentiality and HIV."
http://www.parliament.the-stationery-office.co.uk (search on PatientView)

√ George House Trust
Insight Briefing 01: ‘HIV Update from George House Trust’
November 2002
"In recent years, two major surveys have been undertaken on the issue of GP involvement in HIV services. Both surveys were undertaken by PatientView, a market research and publishing organisation, in partnership with other agencies, such as the Terrence Higgins Trust." References on pages 2 and 5 to PatientView's two HIV surveys, 'Managing HIV: a New Role for GPs' and 'Treatment Options in Primary Care for Patients with HIV: the Specialist View'.
http://www.ght.org.uk/fileupload/uploads/insightbriefinggp1.pdf

√ House of Commons Hansard Debates
Sexually Transmitted Infections
May 8, 2002 - 12.58 pm
"The problems highlighted by the survey are worse when considered in the context of a recent survey
carried out by PatientView, the Terrence Higgins Trust and the British HIV Association, which asked 100 consultants about the treatment of patients in GUM clinics."
http://www.parliament.the-stationery-office.co.uk (search on PatientView)

√ British Medical Journal: News Extra
Specialists attack government for not prioritising HIV
By Jo Carlowe, 2002; 324: 1416
"A report into the care of patients with HIV infection in the United Kingdom has shown an upturn in the number of patients, with specialist clinics stretched to breaking point."
http://bmj.com

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Tel: 0044-(0)1547-520-965 · E-mail: info@patient-view.com
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