The 'Every Disabled Child Matters' campaign (EDCM) has raised concerns at some of the findings contained in a UK Care Quality Commission (CQC) report, ‘Healthcare for Disabled Children and Young People’, published on Thursday 22nd March 2012. The report indicates that primary-care trusts/PCTs (which are a set of administrative bodies running healthcare services in the UK at local level), when replying to a self-assessment questionnaire,  declared "high levels of access and user-centred care". The EDCM campaign, however, insists that this finding is at odds with feedback from families with disabled children, who refer to long waits for diagnosis,  disjointed provision, and a lack of responsiveness to the problems experienced by the families.
'Every Disabled Child Matters' is a national campaign to gain rights and justice for every disabled child, and is run in the UK by four leading organizations working with disabled children and their families: Contact a Family, the Council for Disabled Children, Mencap, and the Special Educational Consortium.   Find out more at: http://www.edcm.org.uk