PatientView is a specialist in the mapping of patient groups and their activities. In addition to the directories below, PatientView has produced two editions of a directory of UK patient groups, and four editions of a directory of European patient groups.
Note that the Directory of Health Apps has now been incorporated into a easily searchable online web facility myhealthapps.net, with hundreds of featured health apps voted favourite by patient groups and empowered consumer
The myhealthapps directory, 2015-2016
European Directory of Health Apps
European Patient Group Directory
This 4th edition of the European Patient Group Directory was compiled by PatientView. The publisher is Burson-Marsteller, and the publication's media partner is the European Health Forum Gastein. The Directory lists overview and contact details of 176 key pan-European health advocacy groups. Three indexes allow readers to access the details on each patient group by its subject area/specialty, by its full name, or by its acronym.
To download your free copy of the Directory
(which is kept on the PatientView blog),
click on the illustration to the left
Foreword to the European Patient Group Directory, by
Paola Testori Coggi,
European Commission Director General for Health and Consumers
"This fourth edition of the European Patient Group Directory focuses on the transparency of the governance and funding of groups active in health policy. This is in line with the approach taken by the European Transparency Initiative (ETI) – a joint European Commission and Parliament measure. Openness can only increase the legitimacy of stakeholders, the process of consultation, and EU policy itself. In the European Commission’s Health and Consumers Directorate, we have a long tradition of involving patient groups in our discussion fora, and consider them a fundamental stakeholder of our portfolio. In the area of health, it is essential that we work together at European level with the widest possible range of partners to develop and implement health policy and actions. This doesn’t just mean national governments and international organizations, but also NGOs, professional bodies and patients groups, as often it is those closest to the challenges that can give us the greatest insights into how to go about tackling them. Since 2004, the EU Open Health Forum has convened every 2 years to inform and involve key health stakeholders in European health policy. The EU Health Policy Forum, which brings together 52 umbrella organizations, meets more frequently to review the EU’s work in various areas of public health and to adopt recommendations. In addition, through on-line consultations on our policy initiatives, we ensure that the widest range of stakeholders and citizens have their voices heard. These and other mechanisms ensure that patient groups are completely engaged in shaping patient-centred healthcare policy in the EU. I am certain that this latest edition of the Directory will be used by many actors in health and will provide useful guidance and open access to patient groups in the European Union and beyond."