PatientView Directories
PatientView is a major specialist in the mapping of patient groups and their activities. PatientView has produced two editions of a directory of UK patient groups, and four editions of a directory of European patient groups. For the EU-funded eurocancercoms project in 2010, PatientView gathered and mapped data on the services supplied by cancer patient groups in Europe. PatientView's latest directory is mentioned below. Our latest Directory, the European Directory of Health Apps is below.
Latest Directory
RELEASED on Wednesday, October 3rd 2012
Latest Directory
RELEASED on Wednesday, October 3rd 2012
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The European Directory of Health Apps
This first edition of the European Directory of Health Apps was launched on October 3rd 2012 at the European Health Forum Gastein 2012. Gastein is a key event in the Brussels healthcare calendar—an annual gathering of European-level policymakers, academics, industry and patient groups [http://www.ehfg.org/home.html].
This unique Directory contains facts about 200 smartphone health apps capable of helping patients self manage their medical conditions. The Directory represents not just the first occasion on which such information has been gathered together on a large number of medical conditions—the key difference about the Directory is that the health apps it lists have all been recommended by patient groups and empowered consumers, then categorised and indexed in several ways (including by local language), to make the details easy for readers to find. Another distinction about the Directory is that it lists health apps on all of the major operating systems (Android, Apple, BlackBerry, Nokia, and Windows Phone), not just apps that are carried on one. Robert Madelin, European Commission Director General for Communications Networks, Content and Technology (DG Connect) has written the Foreword to the Directory.
Words of thanks
"I would like to thank the individuals and organisations helping in the creation of this exciting project—including the many patient groups providing both support and time; four partners (GSK, How are You?, Novo Nordisk, and Sanofi ); media partner, the European Health Forum Gastein; Peteris Zilgalvis and his team at the European Commission, for their constant support; and Henry Nead, who spent his summer holiday conducting the desk research behind the Directory. I would also like to thank designer, Mike Kenny, and printer, James Sherratt, for turning the Directory around so quickly."
Clive Nead,
Editor, European Directory of Health Apps 2012-2013,
September 2012
This first edition of the European Directory of Health Apps was launched on October 3rd 2012 at the European Health Forum Gastein 2012. Gastein is a key event in the Brussels healthcare calendar—an annual gathering of European-level policymakers, academics, industry and patient groups [http://www.ehfg.org/home.html].
This unique Directory contains facts about 200 smartphone health apps capable of helping patients self manage their medical conditions. The Directory represents not just the first occasion on which such information has been gathered together on a large number of medical conditions—the key difference about the Directory is that the health apps it lists have all been recommended by patient groups and empowered consumers, then categorised and indexed in several ways (including by local language), to make the details easy for readers to find. Another distinction about the Directory is that it lists health apps on all of the major operating systems (Android, Apple, BlackBerry, Nokia, and Windows Phone), not just apps that are carried on one. Robert Madelin, European Commission Director General for Communications Networks, Content and Technology (DG Connect) has written the Foreword to the Directory.
Words of thanks
"I would like to thank the individuals and organisations helping in the creation of this exciting project—including the many patient groups providing both support and time; four partners (GSK, How are You?, Novo Nordisk, and Sanofi ); media partner, the European Health Forum Gastein; Peteris Zilgalvis and his team at the European Commission, for their constant support; and Henry Nead, who spent his summer holiday conducting the desk research behind the Directory. I would also like to thank designer, Mike Kenny, and printer, James Sherratt, for turning the Directory around so quickly."
Clive Nead,
Editor, European Directory of Health Apps 2012-2013,
September 2012
What people are saying about the European Directory of Health Apps
Robert Madelin, European Commission Director General for Communications Networks, Content and
Technology (DG CONNECT)
"From DG CONNECT’s perspective, consumers and patients need guidance and support in finding useful and reliable apps. Scrutiny of these apps by informed users (such as empowered citizens and patient groups) could be one way forward. I am certain that this Directory will prove useful, not only to users of healthcare systems throughout Europe, but to the many European citizens who live or strive to live healthy lives as well as for everybody who needs such information in their everyday work.”
Mike Short, Vice President, Telefonica Europe, and President of the Institution of Engineering and Technology
"Many clinicians and policymakers seem to say "Well, all the information is on our website", and do not realise that looking for a website is like being asked to go into a library and search for something that may just be there. These days, in a crowded information world, it is so important to push, personalise, and make advice readily accessible, usable, and, ideally—interactive. That is what the apps in your European Directory of Health Apps are actually doing."
Digital agenda for Europe, 2010-2010 - Facebook
"If you have a smartphone or a tablet, you'll love this! Patient view, a UK-based research group, has just published a new directory which introduces about 200 useful apps. Some encourage people to embrace a healthier lifestyle, others help patients self manage their medical conditions. Take a look & tell what's your favourite!"
http://www.facebook.com/DigitalAgenda
Future Plans
PatientView hopes to expand on this initial exercise in collating patient perspectives on health apps by increasing the number of apps and international scope being covered. PatientView will also shortly post on this website a link to an online survey in which developers of health apps can leave details of the apps they have created—if they want these apps reviewed by patient groups or empowered consumers. (All entries will be treated seriously, and every developer will get a reply about the outcome of the review process.) Finally, PatientView would also welcome the opinions of health professionals on the subject of health apps that help patients self-manage their medical conditions. Even apps are, in the end, no real substitute for proper clinical care. They are, though, an important healthcare tool, providing support to patients and public—a point that patient groups and empowered consumers are already emphasising.
Robert Madelin, European Commission Director General for Communications Networks, Content and
Technology (DG CONNECT)
"From DG CONNECT’s perspective, consumers and patients need guidance and support in finding useful and reliable apps. Scrutiny of these apps by informed users (such as empowered citizens and patient groups) could be one way forward. I am certain that this Directory will prove useful, not only to users of healthcare systems throughout Europe, but to the many European citizens who live or strive to live healthy lives as well as for everybody who needs such information in their everyday work.”
Mike Short, Vice President, Telefonica Europe, and President of the Institution of Engineering and Technology
"Many clinicians and policymakers seem to say "Well, all the information is on our website", and do not realise that looking for a website is like being asked to go into a library and search for something that may just be there. These days, in a crowded information world, it is so important to push, personalise, and make advice readily accessible, usable, and, ideally—interactive. That is what the apps in your European Directory of Health Apps are actually doing."
Digital agenda for Europe, 2010-2010 - Facebook
"If you have a smartphone or a tablet, you'll love this! Patient view, a UK-based research group, has just published a new directory which introduces about 200 useful apps. Some encourage people to embrace a healthier lifestyle, others help patients self manage their medical conditions. Take a look & tell what's your favourite!"
http://www.facebook.com/DigitalAgenda
Future Plans
PatientView hopes to expand on this initial exercise in collating patient perspectives on health apps by increasing the number of apps and international scope being covered. PatientView will also shortly post on this website a link to an online survey in which developers of health apps can leave details of the apps they have created—if they want these apps reviewed by patient groups or empowered consumers. (All entries will be treated seriously, and every developer will get a reply about the outcome of the review process.) Finally, PatientView would also welcome the opinions of health professionals on the subject of health apps that help patients self-manage their medical conditions. Even apps are, in the end, no real substitute for proper clinical care. They are, though, an important healthcare tool, providing support to patients and public—a point that patient groups and empowered consumers are already emphasising.
Other Directories
European Patient Group Directory
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This 4th edition of the European Patient Group Directory was compiled by PatientView. The publisher is Burson-Marsteller, and the publication's media partner is the European Health Forum Gastein. The Directory lists overview and contact details of 176 key pan-European health advocacy groups. Three indexes allow readers to access the details on each patient group by its subject area/specialty, by its full name, or by its acronym. To download your free copy of the Directory (which is kept on the PatientView blog), click on the illustration to the left |
Foreword to the European Patient Group Directory, by
Paola Testori Coggi,
European Commission Director General for Health and Consumers
"This fourth edition of the European Patient Group Directory focuses on the transparency of the governance and funding of groups active in health policy. This is in line with the approach taken by the European Transparency Initiative (ETI) – a joint European Commission and Parliament measure. Openness can only increase the legitimacy of stakeholders, the process of consultation, and EU policy itself. In the European Commission’s Health and Consumers Directorate, we have a long tradition of involving patient groups in our discussion fora, and consider them a fundamental stakeholder of our portfolio. In the area of health, it is essential that we work together at European level with the widest possible range of partners to develop and implement health policy and actions. This doesn’t just mean national governments and international organizations, but also NGOs, professional bodies and patients groups, as often it is those closest to the challenges that can give us the greatest insights into how to go about tackling them. Since 2004, the EU Open Health Forum has convened every 2 years to inform and involve key health stakeholders in European health policy. The EU Health Policy Forum, which brings together 52 umbrella organizations, meets more frequently to review the EU’s work in various areas of public health and to adopt recommendations. In addition, through on-line consultations on our policy initiatives, we ensure that the widest range of stakeholders and citizens have their voices heard. These and other mechanisms ensure that patient groups are completely engaged in shaping patient-centred healthcare policy in the EU. I am certain that this latest edition of the Directory will be used by many actors in health and will provide useful guidance and open access to patient groups in the European Union and beyond."
